Do you have Huntington’s Disease or care for someone with this illness?
If so, we would like to hear from you.
We are the Huntington’s Disease Association Costa Blanca- an independent, local charity offering friendship and support to people living in Spain suffering from, or caring for someone, with Huntington’s Disease.
We:
~ Offer opportunities for friendship and support for all those affected in the Costa Blanca area. Although presently we are based in Almoradi, we maintain contact with people living in the wider community. Currently we meet every Friday afternoon from 2 til 4 pm at O’Briens Bar in El Raso, Guardamar, for a drink and a chat.
~ Provide information and access to advice about what is available to improve the quality of life for those affected, for example, equipment and aids to improve daily living. We have established links with other support groups, voluntary organisations and care agencies so that our Liaison Worker can share information about what is available and help you complete application forms.
~ Through our successful monthly fund raising events we are able to award one off grants for equipment that may not be available through the Spanish care system – or financial support in an emergency situation for a limited period. For example we recently part funded an emergency six week support package for a couple, where the carer had suffered a debilitating injury. This ensured both could stay at home rather than the sufferer of Huntington’s Disease going into a care home.
We would welcome contact with anyone affected by Huntington’s Disease. We have a dedicated telephone number – see below.. You can visit our website on: www.hda.org.es or visit our FaceBook page – facebook.com/pg/HDACB
All enquiries to our President Marion Smith : 634 905 249
N.B – We are currently looking for a Volunteer Vice – Chairman. If you have time on your hands and wish to join this worthwhile charity, please contact Marion as above.
